11 October 2023 19.40 (First treatment is finally completed)
Home sweet home , thank you everyone for your well wishes and offers of help. Me and my family really do have the best circle around us , Leiomyosarcoma your card is marked, no matter how brutal treatment gets keep reminding me I CAN AND I WILL , might have to be Chinese time starving 🙈 oh and little lesson I learnt today , don’t have a kebab night before treatment as farts always sound louder on leather chairs 😂 pity my 1-1 nurse
13 October 2023 06.24
Looking at the weather it’s a sofa surfing kinda day. First chemo session has been quite kind to me so far , first night only way to describe it is I felt drunk , didn’t sleep particularly well but that’s the steroid effect , last night managed 10-5 am , woke a few times and first thing I checked was my eyebrows were still there 😂😂 be totally bald within next few weeks but that’s a small price to pay to make headway in the fight , just a shame the summers over cos I hate wearing hats and defo won’t be subjecting myself to a wig , but gonna have to figure out a solution to keep warm ⛄️
14 October 2023 08.27
Jeez last night was a proper head mash , had to talk myself over the basic of tasks as the sequence just wouldn’t come natural , from the person who could multitask well to having to talk myself through making a coffee wasn’t good . Thankfully got a decent Kip last night as sleep deprivation for 3 nights really left me in a bad place no wonder they used it as a torture in concentration camps . Heads loads clearer this morning and making a coffee came naturally 💕 sorry if I ramble about cancer but so little is openly spoken about it , could hit anyone of us , it did me , my journey could help someone understand there’s or a family members / friend if ever they get the unlucky card
15 October 2023 07.56
Woohoo waking up and being able to string a sentence together 🙈🙈💪🏻💪
17 October 2023 19.30
Pets are so underrated , they really do get you through the darkest times , they’ve not left my side this past week 💕🐶
18 October 2023 20.12
One week on from chemo , Jeez wouldn’t wish It on my worst enemy. Struggled to function due to exhaustion and an absolute brain haze , hated being stuck in and have missed interaction with people . Thought today was a good day until I walked out of asda and had forgot to pay for my shopping 🙈😂😂 never been so embarrassed as when staff came to car and said do you realise you didn’t pay on self serve 😩. 2 weeks time I go through it all again and every 3 weeks after that , let’s hope the chemos are frying my cancer as powerfully as there frying my brain 💪🏻💪🏻
19 October 2023 07.42
Todays daily moan 🙈🙈 my hair hurts , yes as parents it really is a thing , all the years I dismissed the lads creating about going barbers cos it was gonna hurt 😂😂 not lost a strand yet but jeez it’s like hot pins on top of my head 🤷♀️ doctor couldn’t help but laugh when he said have you been in any pain since your first chemo Kirstin as it’s 2 strong ones your on , yes having to take paracetamol cos my hair hurts 😂😂 be pleased when it bloody falls out 🧑🏻🦲
19 October 2023 16.50 (our dog Lottie sat in the sunshine)
Chasing the sun 🐶💕
20 October 2023 06.58
Todays daily moan , actually ain’t got one feel top banana and my hair doesn’t hurt today . So I’ll moan about the weather as today would of been a perfect day to get a couple hours down allotment , mentally and physically refresh myself, but weather has stopped play
20 October 2023 09.43
Scrap that earlier status 😂😂 just shut car door on my face , nice gash and looks like I’ve been in ring , ffs Kirstin your a liability 😂😂🙈🙈
21 October 2023 16.04
Thanks to the sister for taking me out today , nice to have a couple of hours of normal in what is a very abnormal time . Managed to get some errands run that only I could do and nailed a lovely pub lunch , needed a nap after like but nice all the same . Definately need to figure out a game plan for chemo round 2, struggled with being grounded at home for a week and felt isolated , here’s hoping to a normal week next week
25 October 2023 10.08 08.35
Ninjas , bought one in lockdown fetched it home realised wouldn’t fit in any cupboard and no space to have it on side permanent so resorted to getting new actifry instead . Kitchen extension completed and now have space for one. At £250 are they worth the investment , looking at options to make life easier with cooking and the overall cooking at different times for diff people
26 October 2023 08.35
First term of high school completed ✔️ so pleased with how well he’s settled in and cracked on with high school life , we received some lovely postcards home , some lovely comments on his portal and lost count of his star student awards . Other than issues with one pupil which is in hand he’s done fab considering the upside down time we are having , keep being you jacob 💕💕
26 October 2023 15.04
Pulling my hair out literally 😂😂 that’ll be Halloween sorted paint my head as a pumpkin 🎃 let’s see how the trick or treaters like that one 🙈😂🧑🏻🦲🧑🏻🦲🧑🏻🦲🧑🏻🦲
Kirstin Cullen is at Freeport Outlet.
27 October 2023 10.56
Winter 🥶 coat shopping , get the boring errands outta the way to hopefully then get some fun stuff done this holidays ☝️🎃🤪
Kirstin Cullen is with Tony Love.
27 October 2023 16.15
Felt awful past few months that not been able to visit John as much as he deserves , feel sad that after him being such a big part of the family for 20 years he sits from one week to next without a familiar face . But me Tony and Jacob had a lovely visit and restocked his supplies, thankful he’s so happy amongst the staff there 💕💕
Kirstin is with Tony Love.
28 October 2023 (Some hair fell out while she washed her hair)
Ain’t using that shampoo again 😂😂😂 defo getting it whipped off this weekend 🙈🙈
28 October 2023 (Day out at Mablethorpe)
Not quite the beach resort we should of been at but enjoyable all The same , needed this time with Jacob today 💕
28 October 2023 19.23
Rather my bestie of 35 years take it than cancer , she’s fetched her best dog clippers 😂😂 screw you cancer ☝️🧑🏻🦲🧑🏻🦲🧑🏻🦲🧑🏻🦲
Kirstin Cullen is feeling positive at St James’s University Hospital.
30 October 2023 08.57
Bit fresh on the head this morn 🙈🧑🏻🦲🧑🏻🦲 pre chemo check , fingers crossed bloods are good and get the go ahead for Wednesday. Got to say though I feel better than I have for ages 💕
31 October 2023 19.24 (My mum sent over some funny hats for her that were not to her taste)
When mother is law sends you some hats 😂😂😂😂
1 November 2023 14.18
Ain’t gonna lie, woke up with mega monk on knowing what day today was and fact i know the next 5 days gonnna be a uphill struggle but pulled my big girl pants up , round 2 completed though. Sat and thought actually tomorrow is the day I should of been seeing oncologist for first time and here I am 2 treatments down , thank you yvette
1 November 2023 15.23
Some questions are hard to answer at minute with an inquisitive 11 year old , likes to know the ins and outs of a fart 💨 . Played the half term to our advantage and tony and Jacob joined me today. Nice for Jacob to visually be able to see stuff and give him a greater understanding of the path we are on as a family. Hopefully now he’ll understand why I’ll be acting drunk and forgetting everything he tells me 🙈🙈
1 November 2023 19.15
How’s the appetite , you losing weight without trying , the 2 most asked questions by every professional involved in my care 🙈🙈 chinese en route and some of this beauty for afters 😂😂😂 thanks Rachel Handley will defo sort the steroid cravings for a few days 💪🏻💪🏻
2 November 2023 03.53
Should only be one reason for a 3 am get up and that’s a flight to sunnier climates . gonna be a long arse day , cheers mr steroid
Kirstin is at Toby Carvery
2 November 2023 08.50
Taking advantage of us all being up early . Tony was up early to take Joseph for his theory test in huddersfield , before they left the house joseph quickly checked email 🙈🙈 early start again tomoz Tony’s fuming 😂😂😂😂
2 November 2023 18.52
Too good to go bag from Pankhur street food at asda glasshoughton , never even thought when I ordered it at 3 am I can’t have sushi while on chemo , seems a shame to bin it so if anyone fancies a carpet picnic tonight, free to collect from my house
3 November 2023 17.53
Steroids and me really don’t mix , think I’m billy big bollox combined with the hulk and next minute emotional sleeping cinderella . 3 day blip , 3 day blip , screw you cancer
4 November 2023 10.19
A need not a want 😂 where local has proper stodgy parkin , you know the right heavy sticky one
4 November 2023 18.13
This weeks badly thought out plan, save John waiting many more hours in pinderfields corridor after a 14 hour wait for a doctor and then subsequent discharge which then looked like early hours for transport , off we trotted in the new car with tony and joe so they could grab him in wheelchair get him in car and get him back settled in nursing home for 7 pm . Didn’t take into consideration my hair as within hours was the new norm for me 🧑🏻🦲🙈. “ where’s fooking Kirstin when I need her , why you kidnapping me , I don’t know you , this isn’t your car “ quick thinking of the lads oh John Kirstin at home so we’ve had to get a taxi 😂😂 , John pipes up well bloody tell Kirstin she needs to rescue me and come see me cos I hate this taxi and driver 🙈🙈 I know I shouldn’t laugh about demetia but it defo raised a smile this week
5 November 2023 08.46
Woohoo , 4 days steroids done 💪🏻 ain’t gonna lie there evil combined with chemo , billy big bollox hulk can be put away for a few weeks now 🙈😂 ride the tide , screw you cancer
5 November 2023 18.15
Stew and dumplings get in my belly ,
Kirstin Cullen was watching a video.
6 November 2023 10.27
What the body wants the body gets. Pjs , Netflix and haribo 💯.
7 November 2023 08.34
Start the day as you mean to go on 😩😩
7 November 2023 17.49
Barely needed a hat during the day as don’t seem to feel the cold but jeez in bed on a night head is freezing. Nearly reached for a pair of knickers to put on my head last night till i realised my arse currently 3 times bigger than my head 😂😂
8 November 2023 07.04
One week after 2 nd chemo and feel loads better today, the extreme tiredness gone , the slurring and shaking gone , If one week outta 3 gonna be a write off so be it , glass half full focus on the 2 good weeks and enjoy them 💪🏻Screw you cancer
Kirstin is feeling amused.
8 November 2023 08.38
Realised something very important on a cold dog walk this morning, hairloss , hair on my head shaved off not an issue it’s useless to us anyway and only keeps us warm , pubes floated off in bath no drama one less monthly job , nose hair , oh my days I’m gonna spend winter like that kid in nursery forever streaming with snot 😤😤😂😂🙈
Kirstin is with Ann Cullen.
8 November 2023 13.18
Appetite still there 😂✔️ gonna be size of house end next year 🐷🐷 cheers for rescuing me from todays drama mum 💕 can anyone drop me in cas later to retrieve my car please
9 November 2023 08.12
Defo winter coat time , wonder which idiot threw them all away in spring declaring ain’t gonna be this size next winter 🐷🙈🙄
10 November 2023 10.20
💯 this , the circle continues to get small but it’s definitively stronger.
10 November 2023 16.58
Tony nearly home from france , biggest decision I’m making tonight is whether he’s getting me a Chinese or kebab 🐷🐷
11 November 2023 16.17
Love a caramac. Dairy milk caramilk is defo no substitute
13 November 2023 07.53
Looking forward to enjoying a normal week , kicking it off with a trip to white rose today
13 November 2023 13.21
Walking into asda sucking a lollipop and big issue man says “ hello kojak “ proper made me chuckle 🧑🏻🦲😂🧑🏻🦲😂
15 November 2023 15.31
Cake , oh go on then 🐷🙈 lovely catchup with Joanne , kerry and Kirsty, fully enjoying a normal week 💕
16 November 2023 18.14
Mince pie test completed, Costco defo the clear winner this year , absolutely beautiful ,
17 November 2023 08.04 (Our dog Lottie curls around her head at night)
Super grateful for lotties new spot this past few nights 🐶🙈🧑🏻🦲
17 November 2023 14.43
Never known tiredness like it , brekkie in wakey and an hour shopping equals 3 hours on sofa this afternoon
18 November 2023 10.52
Today’s shopping win 💪🏻💪🏻
Kirstin Cullen is with Alison Parratt and Josie Pritchard.
18 November 2023 22.27
Lovely couple hours out for Josies fundraiser for Andy man’s club . Sometimes life takes you on a path you never imagined you’d be on but you have to pull a positive from it and Josie most definitely has , I know Jerome will always be her first thought of the day and throughout the day but her dedication to raising funds for Andy man’s is admirable , tonight we raise a glass for Jerome and every man out there , it’s ok to talk and it’s definitely OK not to be OK 💕
19 November 2023 11.32
Paying the price for trying to have a normal day and night , sofa surfing and cream bun kinda Sunday 😩😩 Screw you cancer
20 November 2023 12.12
Sticks in my mind what was said at my first oncology appointment , every one from then they see am I mentally and physically well and haven’t lost more than 10% of my body weight since treatment starts , well went in my new addidas tracksuit that will never see exercise physically fit ✔️ had a red bull cos tbh feel like a slug today eyes are bloodshot from 1 late night but I bounced into his room mentally fit ✔️ now the weighing 😂😂 2 kg on I’ll take that as a win ✔️ Just to hope the bloods come back ok and onto round 3 we go , round 2 has been hard and didn’t seem to get the good week I needed , oncologist did say though with the chemo mix I’m on every treatment will leave me worse than the one before and energy levels between treatment will continue to decline , but I have to and will fight on, we can’t just wish for it we have to fight for it 🧑🏻🦲💕
Kirstin is at St James hospital. Bexley wing.
22 November 2023 15.11
Liquid lunch finally after a 2.5 hour app delay , round 3 underway , ain’t gonna lie had mega monk on this morning knowing what’s to come , but got to fight for it not wish for it , screw you cancer
Kirstin is feeling amused at St James hospital. Bexley wing.
22 November 2023 16.22 (On the cancer ward receiving chemo)
Assuming by the clap I just got when I woke up that I’ve been snoring like a pig on that 40 winks 😂😂😂
22 November 2023 20.03
Anti sickness meds are tonight’s god 😂😂😂 nice salty Chinese to keep the thirst going to keep dehydration at bay and push the toxins through 💪🏻💪🏻
23 November 2023 07.54
Tucked up like a baby at 9.30 and wide awake at 1.45 am , did debate getting up for day and painting kitchen but realised was a bad idea 🙈 decided to stay in bed and listen to Tony’s various nighttime noises 🙄🙄 he missed chemo 1 as he was away on a trip , chemo 2 he had the week off and enjoyed it so much he’s off now till Monday 😩😩 he try’s bless him but he’s like the lads and his reply’s are often in a minute or soon , or just rambles on about totally boring mind blowing crap , thankfully the steroids make me billy big bollocks and I’ll happily scream stfu 🤬 peace and harmony for a few days 😂😂 erm yes right , on a good note top gf points to Jess who took our loudest darling for the night 💕
Kirstin is with Tony Love.
23 November 2023 11.23
Tony’s been to aldi for first time ever today, Tony isn’t impressed. He doesn’t agree with there product spin off names and expressed his disgust at every product that’s a basic name switch , no doubt he’ll bore me to tears with his disgust for the coming days weeks months 😩😩🙈
23 November 2023 14.46
Big Game of sleeping lions in this house , I sit everyone sits , this washing won’t put itself away , guarantee minute I pick basket up Tony will pipe up oh you sit down I’ll put them away so I’ll sit and he sits 😂😂😂 steroids in full flow now hulk / billy big bollocks activated 😂😩🙈🙈💪🏻💪🏻🧑🏻🦲
24 November 2023 08.10
Would of been a great nights sleep after a 8 pm bedtime had it not been like sleeping on Westgate station , Tony roll over , I can’t any more well put a frigging pillow over your head , billy big bollox hulk from steroids combined with chemical menopause he’s loving his time off 😂😂😂 even gets to come carry my Black Friday shopping today , can see it being a blast and smiles all round 🙈🙈😂😂😂😂
24 November 2023 13.59
Fook off it’s for Xmas stash started 😂😂
24 November 2023 14.56 (Lottie our dog laid on back with food wrapper next to her)
Innocent of course
24 November 2023 19.54
Be pleased to see the back of this week , tested every single emotion and add into it chemo week it really hasn’t been pleasant . A beautiful brave angel now in heaven , a awful chapter as a family now behind us and hopefully lessons learnt and never repeated , feel rough as a badgers arse but got to fight it not wish for it . It’s defo ok not to be ok 💕💕
Kirstin is feeling satisfied.
25 November 2023 16.01
3 days of Tony’s 3 d printer whirring whining and generally being the most irritating noise in the whole wide world , held my emotions for ages , the whirrring broke me and In return 🙈🙈 don’t be a Tony listen to your wife when she says that noise is the most irritating noise in the world and 3 days of it has fooked my head more than the chemo
Love always billy big bollox hulk 🔨
27 November 2023 06.03
Well they was right in what they said round 3 is the worst , oh my days brutal . Can’t even describe the past 5 days as my head been such a mush up from the chemo / steroid mix thank god the steroids done with now . Hated myself this weekend from what they turn me too and I’m sure everyone else does too 😩😩
Fresh day today though and try focus on the positives , slow n steady week planned , bonus is Christmas shopping completed might even think about getting the tree out
27 November 2023 10.17
Today’s biggest decision carvery or McDonald’s. Thank god tastes on its way back as everything tasted vile for 5 days
27 November 2023 18.56
Love it when board games come out you know someone gonna end up with monk on, my money on Tony
28 November 2023 11.35
Random knock on the door off a lady who over years I’ve crossed paths with whilst dog walking , her dogs sadly no longer here . She’d noticed she’d not seen me out and about for ages and wanted to see I was ok , that knock means the world 💕 , If you can be anything in the world be kind ❤️
I may feel like dog shite and be slurring but my heart is warm that someone took the time to check in on me 🥰
29 November 2023
Happy 22 nd birthday to our eldest Samuel , the years have flown by .
Happy 72nd birthday in heaven dad , always in my thoughts
29 November 2023 14.27
Woohoo thank fook those 5 days are over with , billy big bollox hulk Put away now till next time 🙈🙈 gone from wanting to punch everyone to kissing em 😩😩 least I can now string a sentence together without slurring and hold a knife and fork again weirdest feeling ever when your brain can’t coordinate with the body , can see now why oncologist says the doxi – dubi mix I’m on most only make it to 4 rounds then the search starts for a 2 nd line chemo . Gotta fight it not wish for it 💪🏻💪🏻 lovely dinner date with my gorgeous niece so grown up now bless her , clear mind, good company and a full belly, perfect day 💕💕
30 November 2023 07.26
Jeez it’s fresh out this morning 🥶 wrap up warm ,
30 November 2023 11.33
Would like to say nice leisurely shopping trip to Wakefield but jeez forgot how much of an Olympic sport shopping is when you take Joseph 😩😂😂😂 bonus spent nowt but got all my returns done .
1 December 2023 07.16
Who’d of thought we’d be in a era where being able to leave your heating on meant you was privileged , hate reading posts where folk literally scared to put heating on ,
Kirstin is with Tony Love.
1 December 2023 14.02
Tony’s delighted he drove home from London last night to get a bonus day today at home , he’s thoroughly enjoyed the housework this morning , had lunch out and now a second visit to his new fave shop aldi 😂😂😂 he’s over moon that his high pressure job gives him an endless supply of cart wheels 🙈😂😂
Kirstin is at St james hospital. Bexley wing.
2 December 2023 15.19
3 chemos in CT scan time , won’t get results till Christmas , praying for shrinkage but stability would equally be a win with stage 4 🤞🤞
3 December 2023 11.00
Sad reality of being part of the generation that Is killing the high street , pick 3 book in Waterstones total cost £50.97 , as I’m stood waiting to pay flick onto Amazon and manage to buy all 3 for £30.86 . Not only have I saved £20
I don’t have to carry them
Kirstin is with Tony Love at Marks and Spencer.
4 December 2023 07.51
Woohooo hello Monday , had the best weekend in along time simply by it being normal , well minus the scan . Felt better than I have in such along time , energy levels been best they’ve been in months , catch up with good friends , Christmas shopping , now to Chanel the energy into a supermarket trip and a massive clean up and washing splurge , have a fab week everyone 💪🏻💪🏻
5 December 2023 09.37
Lidl middle aisle 50% off , managed to buy loads of shit I didn’t even know we needed 😂😂
5 December 2023 13.23
So 18 weeks after being told over the phone whilst driving down m62 with Jacob that I had cancer by a locum gp the surgery decide to write to me to offer there support , muddled through this long and I’ll sure I’ll muddle along, 3 times in past month I’ve tried to get an appointment and they’ve told me none left so I’m sure they’ll tell me same if I try ring for this ✌🏻
6 December 2023 07.54
Cold 🥶 one this morning
6 December 2023 10.54
Missed teddy so much this past couple months , nice catch up over breakfast this morning 💕 he’s coming on a treat bless him and right little chatterbox
Kirstin is with Joseph Love.
7 December 2023 05.51
Happy 18 th to the one that’s kept me on my toes , made every day different and generally been an absolute whirlwind , life’s never boring when he’s around and wouldn’t change him for the world , maybe just reduce his volume cos he’s always heard before seen . Have the best day Joseph , welcome to adulthood 💕
8 December 2023 09.39
Well started the day so well and motivated , under stairs cupboard stripped out , contents all over lounge , now laid on sofa watching greatest showman 🙈💪🏻💪🏻 think my new nickname needs to be mrs half a job
8 December 2023 12.32
Sometimes we’ve had our lasts without realising , make every day count , life definately ain’t a dress rehearsal 💕💕
Kirstin is with Tony Love.
9 December 2023 09.19
Well that’s Tony safely on his way to Korea , don’t know who’s gonna be more pleased of the peace me or him
😂😂 ain’t gonna lie I’m looking forward to some good nights kip starfishing with no background noise ,
10 December 2023 21.07
Jeeez hot flushes are having my life at minute, damn chemical menopause , crackers though that chemo puts your ovaries to sleep to then after chemo they come back to life and then at some point you re enter menopause again naturally , oh well
I’ll enjoy my trial run 🙈🙈😂
13 December 2023 16.12
Received my Ct scan results this week, they’ve shown stability and thankfully no new spread , now onto next 3 rounds and re scan . defo can’t say I skipped in here today to receive chemo number 4, getting ready for the overnight transformation to billy big bollox hulk 💪🏻💪🏻💪🏻
13 December 2023 17.28
Jeeez if they was to knock heating down a degrees in hospital think how many more staff they could employ with the savings plus would stop the sweat running in places it never should 🥵
Kirstin is with Ann Cullen and Tony Love.
13 December 2023 19.14
Last chemo of 2023 done , next few days will be a struggle especially with no tony to fire billy big bollox hulk at 😂😂 now there’s only 2 C words I need to Focus on for the rest of 2023 , Chinese and Christmas , this year has totally made me have rethinks , the big things in life don’t matter it’s the little things that count , and it’s defo not what’s under the tree it’s who’s around it ps . Must get a tree 🙈🙈
Every single one of you on my Facebook I chose to let you share my journey, the highs the lows and the in between, appreciate everyone’s support and words of encouragement so much . This defo isn’t a path I’d wish on my worst enemy , out of 67 million in uk Leiomyosarcoma chose me to be one of the 525 people to be diagnosed with it this year 😩😩
Screw u cancer
Screw u Leiomyosarcoma
Make every day count cos no one is guaranteed tommorrow , life defo ain’t no dress rehearsal 💕
13 December 2023 22.36
You know when your just starting in a great dream and then get woken, yes by the fooking dog who thinks it can lick my head like it’s a bleeding mr whippy 🍦 tonight I hate this fooking lottie 😂🙈
14 December 2023 14.24
Woohoo tree is up , don’t give 2 shits nowt matches cos every decoration fetches back a memory of trips to garden centres and shops with the lads , they may not be memories they’ll remember but I certainly will 💕💕
15 December 2023 09.05
What steroid and chemo munchies want they get, supermarket shop done , brekkie done , 5 am get up means lots of housework ticked off , go home and chill and a visit from sister later , have a fab weekend everyone
15 December 2023 10.55
Could do with one of them dog leads today that says reactive may bite. Where’s Tony when you need someone to snap at oh yes in Korea , safest place for him 😂😂😂😂😂
15 December 2023 15.35
When there’s that one present under the tree that you keep looking at and laughing cos you know the recipient is gonna respond calling you a 4 letter word 😂😂😂😂
16 December 2023 09.53
Woohoo billy big bollox hulk 😩🙈😂 not a want it’s a NEED , walked into Asda survived the barrier of doom
💪🏻💪🏻 wanted bread, milk , ham and a paper , 3 steps into Asda NEEEEEEDED yop , tastes are fooked everything tastes rank but it popped into my head that used to drink it prob 20 years ago and was so cold and tarty and bloody delicious. Can’t get the taste and need outta my head , raging cos Asda normy don’t sell it, bought 12 munch bunch yoghurt drinks as an alternative 2 down and I NEEEEEED yop , ain’t got it in me to trail
Every supermarket and shop , any clues cos right now it’s only thing I NEED WANT AND DESIRE . Tony in Korea , Sam in bed after nights and Joe would make me wait 3 weeks 😩😩😩😩
Chemo cravings are the worst ever , screw u cancer ,
16 December 2023 10.56 (Her friend hand delivers her a Yop)
Happy Kirstin 💕💕 Kayleigh you are a star 🌟
16 December 2023 14.36
Is anyone able to wipe a ps4 for me please . Want to get it done so it can hopefully make Christmas bit more magical for a struggling family
16 December 2023 19.29
Feel shit , look shit , eat shit , rock n roll Saturday night , amazing how good a pot noodle can taste when your starving and no energy to make ought , paracetomal and bed , they said it got harder every time , they weren’t foooking wrong , night all , tommorrow be a better day 🤞🤞🤞🤞🤞
17 December 2023 06.01
Well hello Sunday , what a rough 12 hours , but counting my blessings that it’s the first time I’ve ended up poorly from the chemo usually I’m just head mashed 💪🏻💪🏻 fresh day and gonna be a good one
17 December 2023 10.02
Honestly couldn’t be prouder of Jacob. It’s weird how this past few months has given me loads of time to sit and observe watch life in a much slower motion , nothing is too much trouble for him , he’s kind , caring , respectful and would do anything to help anyone. He comes home from school dumps his bag and says is there anything I can do that you’ve not been able too . Today I’ve said come on we will have an hour in Wakefield and you can see is there anything you want us to buy you as extras for Christmas , mum only thing I want can’t be bought I have to wish and pray for it 💔 honestly we broke the mould with Jacob couldn’t wish for a better lad by my side always ❤️
Kirstin is at Wakefield Cathedral. (Lighting a candle for those gone)
17 December 2023 13.04
❤️❤️❤️
18 December 2023 07.31
Final 7 days for Xmas , Jeez this year has flown past , looking forward to getting all the final jigsaw pieces into place this week , getting the alarms turned off and enjoying some much needed down time , I’m sure Tony more than ever wants to get himself home from Korea as long as he leaves his nighttime noises there I’ll be happy. Some random gifts to open this year and wrapping whilst confused erm god knows who’ll
Open what but every gift been bought with love and thought , looking forward to kicking off the 7 day countdown with friends today , have a blessed day everyone
Tony Love is at Inter Burgo Hotel, Wonju.
19 December 2023 09.31
Wonju, South Korea
Heading home
Kirstin (Replied)
No no no Ffs just got into swing of being in possession of tv remote ,, only joking looking forward to you getting home ❤️
19 December 2023 20.52
In the weeks ahead you’re probably going to see a lot of people posting the best bits of their year, the best moments, their wins, the happiest of times.
But it’s totally okay if your biggest accomplishment was simply getting through the year 🫶🏽👏🏻👌🏼❤️
Kirstin is with Rachel Handley and Philip Handley.
20 December 2023 07.54
2 very happy boys this morning ( pic doesn’t look it but that’s pretty teen smile ) , completed there first 3 months of high school
And continued to be the kind , hardworking , polite kids theyve always been , they’ve been rewarded with a night at the ice hockey in January fully paid . So pleased how Jacob’s taken to high school and proud of his primary school friends who’ve not only continued to be an amazing bunch of lads but a fantastic friend to Jacob .
Kirstin is with Ann Cullen and 2 others at Heathfield Farm.
20 December 2023 14.57
Lovely Christmas catchup with my mum , sister , niece and the little prince teddy ❤️ full belly happy Kirstin
Kirstin Cullen is at Tesco Extra.
21 December 2023 09.59
Avoiding the stress of the Christmas food shop by selecting the right area , no fighting for party food or pigs in blankets here 🙈
22 December 2023 19.29
Looking over Tony’s shoulder and seeing him searching pan sets and knife blocks on Amazon 😩😩 he better not be desperation buying 😂😂😂😂
23 December 2023 10.05
Farm shop pork pie for breakfast 😋😋 must be nearly Christmas
Kirstin is with Tony Love.
23 December 2023 13.08
101 jobs to do , house a tip and you’ve Tony mad professor love spending 2 hours running experiments seeing how many balloons it take to lift a blow up reindeer 😩😩 he’s starting on the blow up Santa now 🙈 bet your bottom dollar they’ll be floating over normy later 😂😂
23 December 2023 14.42
4 hours in and I’ve Santa bumming Rudolph floating round my lounge 😩😩🙈🙈🙈
23 December 2023 14.52 ( I release my helium filled Santa)
Think it made it as far as ashgap lane 😂😂😂
24 December 2023 13.14
Even £120 of meat for £20 couldn’t put a smile on his face in aldi 😂😂😂
24 December 2023 13.54
Spare fresh turkey crown if anyone wants , dated 26th 👌
24 December 2023 14.42
So come on what’s this storms name
24 December 2023 21.36
I’m ready 😂😂
Kirstin is with Tony Love
25 December 2023 07.55
From my house to yours merry Christmas ,, doesn’t matter how old they get they’ll wake to a stocking 🙈🙈🙈
Hope everyone’s day is filled with love and peace ❤️
Kirstin is with Tony Love.
25 December 2023 09.47
Mr love over the moon with his well thought out gift 😂😂 a box full
Of Aldi chocolate delights 🙈🙈 he hates it 😩 but its made me chuckle for weeks so it’s a win win 💪🏻😂😂😂
Kirstin is with Tony Love.
25 December 2023 14.42
Truly must be Christmas 🎄 a very rare picture of us all
Together ❤️
Kirstin is with Michelle Pitfield.
27 December 2023 18.25
No way I can sum up the emotions of today . But one thing is for sure family is family whether it be by blood or marriage 💕
28 December 2023 11.25
Jeeeez just got a quote for travel insurance 🙈🙈 either need to stick to butlins and haven or spend all year jetting off to get my moneys worth out of the policy 😂😂
28 December 2023 14.27
Yesterday we took the call to say John was dying and to get there quick, a new nurse had seen him and made the call he was a dying man and end of life meds ordered . Today he’s sat up in bed back to his old self and over the moon that his daughter , granddaughter and great grandson have come up from the Isle of Wight . End of life meds now safely stored away . What a bundle of emotions this past 24 hours . Whatever happens he knows he’s loved , he’s been surrounded by people that no matter what journey he’s been on this last couple of years he’s loved unconditionally not just for the man he was but the man he is now ❤️
28 December 2023 22.02
For all the wrong reasons it’s been a perfect day , great to be in good company with a mutual bond , lovely meal out today with nothing but chatting and laughter ❤️
Kirstin is with Ann Cullen and 2 others
30 December 2023 08.29
As the year approaches the end , this year will definately be about the fun times we had and the memories we created , hope 2024 provides the same ❤️ life definately isn’t a dress rehearsal , live your best life
Kirstin is with Joseph Love and Jess Sproule at The Dome, Doncaster.
Kirstin is with Joseph Love and Jess Sproule.
30 December 2023 20.36 ( trip out ice skating )
I shouldn’t but I did and was crap 😂😂 me Jacob and Joe were like Bambi thankfully Jess was great , defo a past time I left behind in my 30’ s 😂😂
31 December 2023 09.44
Well you ain’t gonna get a new year new me status from me , because you know what whether I’d be fat or thin , healthy or unhealthy , rich or poor I’d be in same situation I am now , so 2024 I’m gonna be same , continue living my best life , shut myself off from negativity , enjoy every day because tommorrow is never guaranteed , hope everyone has a fab new year and whatever your resolutions make sure your true to yourself 💕💕💕
Kirstin is with Tony Love.
31 December 2023 17.35
Last lesson of 2023 🙈 cards against humanity isn’t the family game I thought it was 😂😂 Jacobs got a whole new vocabulary
1 January 2024 07.32
First blank page of a 366 day book , make it a good one everyone , happy new year 🥳
1 January 2024 11.11
Seen as I was up bright and early , cracked straight into the clearout, anyone know whether cas tip open today, google is unclear
1 January 2024 19.28
Starting the year well 🙈 🐷
3 January 2024 13.17
Ain’t feeling no positive vibes today , can now 💯 understand why the oncologist said many only manage to get to chemo 4 of this mix , number 4 really wasn’t kind , for first time ended up with sickness and mouth sores and generally spent the 21 days between cycles run down and feeling like a slug and catching every bug going . Came as a suprise yesterday when oncologist said my bloods levels were great and did I want to take chemo number 5, took all I had through gritted teeth to say yes , tbh ain’t much choice in the matter , without it the tin of corned beef in the cupboard has a longer life span than me .
Pull the big girls pants up and soldier on , don’t pity me pity the people around me who’ll see billy big bollox hulk emerge the next few days , least they know what to expect now 🙈🙈
3 January 2024 16.03
Feel as sick as a blood dog , was just about to say screw you cancer screw you chemo but then remembered the breakfast triple , monster munch, lemon sponge and giant bag of sour jellybeans I devoured whilst in chemo 🙈 so screw you fat cow , self inflicted 😂😂 hope it wears off ready for Chinese later , for medical reasons of course , nice salty meal means drink loads of fluids and push the toxins through quicker as currently peeing what resembles orange lucozade
4 January 2024 17.47
Weird looking back to 3 years ago , wtf did we endure . Defo a time to look back
On for the time the world semi stood still and we appreciated the most basic things , the times we cried for loved ones we’d lost
4 January 2024 21.10
Old school pudding , semolina and a dollop of jam proper retro. Despite a 3.30 am get up todays been an okish day , bit of “ fool me once “
And then bed 💕
5 January 2024 07.27 (one of the first chickens we brought for the allotment)
God bless little snowball , and what an age she managed to reach , well over 11 years old , one of our first chickens. Layed us 100’s of fresh eggs over the years , she decided other year was fed up of being a hen and started cock a doodle doing 🙈🙈 she defo lived the best life but sadly yesterday old age took her 💕💕
5 January 2024 11.07
Oh happy days , if only calories cured cancer 🙈🙈
Kirstin Cullen is with Joseph Love.
5 January 2024 13.02
3.30 am online shop clearly was bound to have a mishap , grey checked brushed cotton bedding for Joseph , hope he likes the addition of hedgehogs 🙈🙈 very masculine
Joseph Love
😂😂😂👍😎👍 ·
Kirstin is feeling emotional.
5 January 2024 17.24
What started as a good day fast turned into a shit day. Defo unpredictable these first few days after chemo , let’s hope this sausage casserole I’ve cooked followed by a cream
Bun puts a smile on my face and the pain killers take the edge off taking the stairs on my arse.
Kirstin is feeling grateful.
6 January 2024 14.01
Sick of the same surrounding , sick of the same mood , sick of negative , sick of sick , dressed the bottom half and hid the braless top half and made my way to Greggs , tuna crunch baguette the one food that’s taste never changes with chemo , tastes as shit after chemo as it does before so always a win win 😂 nowt worse than eating your fave foods and they taste awful so good to throw some of your least favourite in there too 🙈🙈 . Bumped into a long time friend Georgina Tate I rambled 20 convos in 1 and she listened needed that today , nice big hug something I’ve needed this week . Serena Macaluso nice to bump into you and thanks for your kind words .
Chill out now with full belly and good doctor ,
7 January 2024 08.04
12 hour kip equals happy Kirstin 💪🏻
8 January 2024 11.48
When Facebook asks what’s on your mind , for once I’ll remain silent 🙄🤪
10 January 2024 11.59
Well that’s been a rough 5 days 😩😩 thankfully the fog has started to lift , the cognitive ability returned , I’m no longer like Bambi and the rage has gently faded away . Lovely catch up with Claire Wilkinson this morning , check me out all healthy with fruit 🙈🙈💪🏻💪🏻
10 January 2024 20.12
What’s chemo fog 😩😩 going to the vet and forgetting to take the dog , staring at your child for a minute trying to remember there name , putting fabric softener in your coffee , trying to swipe a sanitary towel as contactless , forever entering a room and not a clue why your there , ringing school to order a prescription , checking into dentist for your smear , trying to peel a apple whilst biting an orange.
No one talks about it , no one tells you , hospital put that much emphasis on you’ll get diarohea and sickness with chemo , you’ll be extremely tired , that’s just a snippet of my few days after chemo . I’m pleased I can laugh at them , defo makes life interesting at times 🙈🙈😂😂🤪🤪
11 January 2024 09.25
Starting the day walking further than the fridge , fast realised got to be your own motivator 💪🏻 gonna make today a good day 💕
12 January 2024 19.13
Not the ending to the week id of hoped for but gotta make do and flip
It on its arse to turn a negative into a positive , roll on summer 💪🏻💪🏻
13 January 2024 13.33
Staying safe from the Lergy that’s hit the house and letting my belly be my sat nav
13 January 2024 14.26
Drop on trouble where ever I go 🤪😂 rioting between nots and Grimsby football
Fans , never seen as many police
14 January 2024 11.53
Home after a lovely night away , only took pics of food 🙈🙈 so nice to break away from the house that’s felt it’s become my prison, spur of the moment decision after seeing Jacob and Tony poorly 😷 ain’t got the immunity to play nurse 👩⚕️. Change of scenery , change of routine and someone else cooking has definately been what I needed , been lovely to spend time with my sister , we lead totally different life’s and have done for many many years, but really do appreciate how much of a support she’s been not only to me but Tony and the lads 💕
Screw u cancer 2024 is the year we turn negatives to positives
16 January 2024 17.56
Feels weird being overjoyed about managing to have normal
Days and do normal things . Never ever take your health for granted as so much can change in the blink of an eye . Ending the day with a gorgeous tea made by Nicola Hale beautiful and much appreciated 💕💕
17 January 2024 11.44
Happy 83 rd birthday John . So hard to see you now looking a shadow of the man you was , a fantastic father in law to me and a fab grandad to the kids 💕
17 January 2024 20.26
Random 4 am wake up today , mega busy day . Finally found the bottom of the wash basket 🤪 , nice long walk out with the dogs , errands run and Jacobs ehcp
Completed, doing fab bless him
Thrown himself into high school life and I couldn’t be prouder. Tony on his travels so early night with the fur babies
18 January 2024 12.34
Sometimes you just have to act now think about it later 🙈🙈
22 January 2024 19.48
Been lovely to enjoy a full week of normal whatever normal is in this house 🙈 chemo number 5 was defo kind to me and other than thrush in my mouth and sores bounced through it . I loved spending last week as the old me , having the energy , enthusiasm and strong mindset to make good decisions , bad desicions and crazy ones but I stand by them all . But all good things come to an end , chemo number 6 this week , bloods are borderline so we know it will be a hard hitting one and prob like chemo 4 where I got 19 bad days outta 21 but we march on , I can’t ride the storm i have to be the storm . Found out today that despite my liver being one of the organs the cancer had spread too it’s actually functioning at 100% which many peoples healthy livers don’t reach that percentage , so minor victory combined with I’ve somehow lost a kg between chemos I’m celebrating with my favourite cream bun 💪🏻💪🏻
24 January 2024 16.22
3 hour delay means I had monk on before I’d even started the jungle juice 🙈 6 th and final one of this brutal Mix . Heart scan next week to see if it’s caused me any heart damage which we knew that was a possibility , ct scan to see which way these 3 rounds have gone , then to soldier on with a singular chemo which hopefully will be loads kinder and easier side effects all round . Oncologist at the start told me people rarely make it past 4 of the mix I’ve been on before they say they can’t take it anymore . I’ve been so blessed that so many have spurred me on , encouraged me , listened to me and most of all supported me to give me the fight to carry on no Matter how tough it got 💪🏻💪🏻 appreciate every single one of you , long hard slog ahead and my long term future is uncertain but whilst ever I’m breathing I’m fighting , gonna celebrate with a Chinese tonight that I got to where my oncologist doubted I’d reach , love a good challenge 💕💪🏻✌🏻
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